Stop fiddling while Rome burns guys. Turn your attention to actually finding a cure for this disease. And if you want a new name, simply call it Living Hell Disease.
Severe ME/CFS...Time for a cure not a new name
Stop wasting money on a new name...you could have spent the US$1 million this report cost to conduct research into actually helping Severe ME patients. As if Chronic Fatigue Syndrome wasn't bad enough...now they've come up with a new moniker: systemic exertion intolerance disease (SEID). I can hear the cruel jokes already...
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Useful Links:
- Understanding Severe ME Book - Amazon
- Open Medicine Foundation
- Unrest Film - Severe ME
- http://tymestrust.org
- http://drmyhill.co.uk
- http://afme.org.uk
- http://www.survivingsevereme.com
- http://www.25megroup.org
- http://www.meassociation.org.uk
- http://www.meresearch.org.uk
- http://www.stockportmegroup.co.uk
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