Stop fiddling while Rome burns guys. Turn your attention to actually finding a cure for this disease. And if you want a new name, simply call it Living Hell Disease.
Severe M.E. Information Pack
Severe M.E. is a cruel and physically disabling illness which wrecks the lives of thousands in the UK and millions worldwide. I know because it took my life for several years. One of my promises back then was to do all I could, when able, to help the Family and Friends of Severe M.E. Patients understand the nightmare that their loved ones are going through; what Patients and their Carers have to battle against every day, and how the understanding, support and compassion of Family and Friends can make such a dramatic difference to their speed of recovery. Hence this Blog and the writing of my 'Understanding Severe M.E. Information Pack'. I do so hope that both help guide you through the hellish maze that is Severe M.E.
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Severe ME/CFS...Time for a cure not a new name
Stop wasting money on a new name...you could have spent the US$1 million this report cost to conduct research into actually helping Severe ME patients. As if Chronic Fatigue Syndrome wasn't bad enough...now they've come up with a new moniker: systemic exertion intolerance disease (SEID). I can hear the cruel jokes already...
Posted by Blogger Catherine