The one question I get asked most after 'how did you make a good recovery from Severe ME?' is: 'what can I do to help my daughter/sister/nephew/friend etc?'
I cannot stress the difference the support of friends and family can make to a Severe ME Patient's chance of recovery. My husband and I were incredibly lucky to have the support of so many of our relatives and friends, without whom, my recovery would not have been possible.
However, I have to admit that around 20% of our nearest and dearest were vile, and the source of immense stress when I was ill, a mixture of 'Doubting Thomases', 'Brick Walls', 'Energy Vampires' or 'Head in the ground Ostriches'.
If you want to help someone dear to you who has Severe ME, there are three precious gifts that you can give to them and their Carer (s):
1. UNDERSTANDING - Listen, learn and educate others.
2. CONSTANCY - Be there for them for as long as it takes, remember recovery can take years.
3. UNCONDITIONAL SUPPORT - Whatever they need, whenever they need.
Just remember, they can recover, in time.
Severe M.E. Information Pack
Severe M.E. is a cruel and physically disabling illness which wrecks the lives of thousands in the UK and millions worldwide. I know because it took my life for several years. One of my promises back then was to do all I could, when able, to help the Family and Friends of Severe M.E. Patients understand the nightmare that their loved ones are going through; what Patients and their Carers have to battle against every day, and how the understanding, support and compassion of Family and Friends can make such a dramatic difference to their speed of recovery. Hence this Blog and the writing of my 'Understanding Severe M.E. Information Pack'. I do so hope that both help guide you through the hellish maze that is Severe M.E.
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