Sensitive BBC article on the tragic story of Merryn Crofts whose family have worked so tirelessly to secure formal recognition that this poor, poor girl died from extreme malnutrition caused by Severe ME.
Heartbreaking story, but an incredibly brave family who carried on fighting for their beloved daughter and sister after her death to secure vindication and recognition of how life threatening Severe ME is.
https://www.bbc.co.uk/news/amp/health-44969741?__twitter_impression=true
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