Millions Missing Still

We are already well into 2019 and it fills me such sorrow to realise that yet again in May, we will be running another event to try and raise awareness of the cruel reality of Severe ME.

When will the Millions Missing Severe ME Patients stop being ignored, mistreated, patronised and left to rot in their beds?  When will their Carers receive the help, guidance and support that Carers of other physically disabling illnesses receive unconditionally?

I honestly believe how ME Patients have been treated for decades is the single biggest medical scandal since AIDS.  And when will it change? When will the powers that be in the medical world scream "Enough"?  Lives are being lost, childhoods ruined, careers abandoned, families shattered and yet here we are, again, going into another ME Awareness Week 6-12 May.

It makes me want to weep.  But know this, our roar is getting louder and I believe our voices are being heard more. But we need to keep the pressure on. However, those who are so physically disabled by ME need to concentrate on themselve and exhausted Carers need to leave the campaigning to people like me, our family and friends and the few Politicians who seem to care, notably Carol Monaghan MP.  We understand exactly the hell that is Severe ME and we will not rest until the Millions Missing receive the help, guidance and support they so desperately deserve. 

One day, I hope ME Awareness Week will not be needed. But in 2019 it still is, and I am looking forward to roaring for all of you, in Manchester on Saturday 11 May 2pm-5pm St Peters Square, where we will again be laying out shoes and stories to represent the Millions Missing, in such a powerful and emotive way.