Severe ME/CFS Information Pack

Severe ME/CFS is a cruel and physically disabling illness which wrecks the lives of thousands in the UK and millions worldwide. I know because it took my life for several years. One of my promises back then was to do all I could, when able, to help the Family and Friends of Severe ME/CFS Patients understand the nightmare that their loved ones are going through; what Patients and their Carers have to battle against every day, and how the understanding, support and compassion of Family and Friends can make such a dramatic difference to their speed of recovery. Hence this Blog and My Severe ME/CFS Information Pack now available as an e-book. I do so hope that both help guide you through the hellish maze that is Severe ME/CFS

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Severe ME Patients neglected

The findings of this research came as no surprise to me.  Nor will it come as any surprise, I'm sure, to the many thousands of Severe ME patients currently laying in darkness, in pain, unable to walk, talk, wash, feed themselves or go a day without needing bedpans.  It's disgusting how little is done to support Severe ME patients.  On the upside I guess any research into medical services to support Severe ME patients has to be a good sign doesn't it?  Let's hope so.

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