Severe M.E. Information Pack

Severe M.E. is a cruel and physically disabling illness which wrecks the lives of thousands in the UK and millions worldwide. I know because it took my life for several years. One of my promises back then was to do all I could, when able, to help the Family and Friends of Severe M.E. Patients understand the nightmare that their loved ones are going through; what Patients and their Carers have to battle against every day, and how the understanding, support and compassion of Family and Friends can make such a dramatic difference to their speed of recovery. Hence this Blog and the writing of my 'Understanding Severe M.E. Information Pack'. I do so hope that both help guide you through the hellish maze that is Severe M.E.

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Severe ME Patients deserve care and compassion too...

Sadly over the last year a dear friend of mine has been battling bowel cancer.  She has received fantastic compassion and care from a huge team of medical hospital...and now sadly in a hospice.   And rightly so.

However, I cannot help but wonder why severely affected ME Patients are not given that same level of care and compassion?  Severe ME may not be a terminal illness but it takes patients' lives.  It is high time that patients receive the treatment they deserve.

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