Severe ME/CFS Information Pack


Severe ME/CFS is a cruel and physically disabling illness which wrecks the lives of thousands in the UK and millions worldwide. I know because it took my life for several years. One of my promises back then was to do all I could, when able, to help the Family and Friends of Severe ME/CFS Patients understand the nightmare that their loved ones are going through; what Patients and their Carers have to battle against every day, and how the understanding, support and compassion of Family and Friends can make such a dramatic difference to their speed of recovery. Hence this Blog and My Severe ME/CFS Information Pack now available as an e-book. I do so hope that both help guide you through the hellish maze that is Severe ME/CFS

Email understandingsevereme@hotmail.co.uk for details

Lynn Gilderdale’s moving account of why she decided to end her life - Guardian On line

Heart breaking reading but necessary if you want to begin to understand the hell on earth that is Severe ME. I do know the hell that Severe ME is...I was little more than a breathing corpse for over 2 years...but I was one of the lucky ones to get better...Lynn wasn't, and with tears streaming down my face, having read Lynn's own words in the Times article below, I just wish that I could have met that brave, brave girl.
Shame on all the 'powers' that failied Lynn and allowed Lynn and her family to go through this suffering...it is time that Severe ME gets to the top of everyone's agenda...NHS, Research Bodies, Government...I really don't care, but PLEASE will someone do something to ensure that we are not reading another story in ten years times of another young life wasted.

http://www.theguardian.com/society/2010/jan/25/lynn-gilderdale-me-assisted-suicide

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